For those of you who don't know, K is a beautiful little girl who was affected by Amniotic Band Syndrome (ABS). She was born with a malformed arm and several other problems related to the ABS.
Tuesday, February 28, 2006
K Update
Just wanted to give you all an update on K's condition. We will be going to a Shriner's hospital in March for a second opinion. Please pray that everything will go well. Also, an interesting note, K slept through the night last night! I am not getting too excited because I know that she probably will not do that again, but I woke up at 4:30 this morning and freaked out. I lay there praying she would make a noise so I would know she was still breathing. It makes us feel better knowing that she is capable of sleeping all night. I know that sometimes that is hard for a baby to get used to. Just pray that she will continue to gain weight and grow. She is already out of some of the premie clothes and she is just growing like crazy. We can't believe how big she has gotten already. I don't know if I will want to go to work. I am getting used to this mommy thing and I have to say that I am doing a pretty good job. Thank you again for all of the prayers and encouraging words. God has blessed us with family and friends (some that we have never even met).
Enjoy Our Angel
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God's Faithfulness (corrected)
Today I was doing my devotions and I have been reading from the book of James. Nate suggested I do that and I wasn't sure why, but today's verse just clinched it for me. James 4:8 says, "Come near to God and He will come near to you." It has been hard to deal with K's problems and I have had moments when I cry out to God for a reason why. Many of you out there know exactly what I mean and if you haven't hit that point in your life, you will. My life up until K was very mediocre. My walk with God had its ups and downs, but mostly I did not understand the struggles Christians face. The minute K was born I faced something I never had to face before, the helplessness that comes from being unable to fix something. I looked forward throughout my entire pregnancy to playing duets at the piano with my daughter. I looked forward to watching her fingers gently glide over the piano keys. God had given me a gift and I had hoped that He would do the same for her. This is hard to write because my little girl will struggle with simple things, let alone learning to play the piano. I had even thought about never playing again because I would hate for her to feel badly about not being able to do it just like mommy. Valentine's Day was the first day I sat down and played the piano. It was hard, but I know that God wants this gift to be used. I don't know why He allowed K to have these problems and I know that it will be a struggle for us, but He does have a purpose for this beautiful little girl. We have had overwhelming support from friends, family, and people we have never met. God says to come near to Him and He will come near to us. What a beautiful promise! K doesn't have fingers, but what gifts she has are going to blow us away. I can't wait to see what her life will be like. God is truly good.
Saturday, February 25, 2006
Our First Family Walk
So we all went out for a walk yesterday because it was so nice. It was great! We walked around and saw the neighbors while enjoying the weather. I know Christa enjoyed the time out as an entire family. Twinkie also enjoyed the time which was noticeable to us because she was so hyper. She has not been walked by Christa and I for around two months now and it used to be our daily routine. Here are a few pics of K in her first stroller ride.
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Friday, February 24, 2006
Grandmom's Angel
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Daddy and daughter time
Wednesday, February 22, 2006
Snuggle Time
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Tuesday, February 21, 2006
Medical Update
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Friday, February 17, 2006
Embarrassing But Cute Pics
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Christa shortly after giving birth. I think it is beautiful, but she would disagree.
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This was another early morning bonding experience. She is so cute even if she does interrupt sleep.
Tuesday, February 14, 2006
Bonding Time
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Snug As A Bug
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Sunday, February 12, 2006
More Daddy Times
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Friday, February 10, 2006
Tuesday, February 07, 2006
More Medical Info
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Thought I would plug in some more info that was not put in the earlier post from Christa. We spoke with K's Doc about a second opinion on her forearm/hand and he is going to see about us meeting with some doctors in
During the visit this afternoon the Doc noticed that K always has her head tilted toward her right arm. It appears that she has a VERY tight muscle on the right side of her neck and to avoid pain from that muscle she tilts her head that way. Christa and I have to try to stretch that muscle a few times a day and if that does not work we will probably have to go to a physical therapist and see what he can do. K also had some x-rays taken today because she appears to possibly have a maldeformed rib. We were unable to tell much about it through the x-rays so we will have to wait and see what will happen. The Doc assured me that there is nothing to worry about in regard to this.
We have handled all the medical info alright. With her forearm/hand and now these other things it is sometimes hard to understand God's plan. It is not ever easy to understand God's plan when it comes to things like K's situation. We do know that He is in control. We do know that He will take care of us. We also know that He will take care of K no matter what. While we know these things it still does not make stomaching all of the stuff easy. We felt like we were getting a decent handle on the situation and then these other things come into the situation. As parents we find ourselves asking what else is going to happen. We both know that the situation could be much worse and are thankful that it is not worse. We are so blessed in K and we are constantly reminded of this fact. Please keep us in your prayers as we continue to walk the never uneventful life of parenthood.
Monday, February 06, 2006
Mommy's Little Angel
K's Medical Update
We have just come back from the pediatrician and things are going well with K. She is up to 6 pounds and 10 ounces. She has also grown to 20 inches. The doctor was very positive and we are thankful that K is doing so well. We are looking at helping her gain even more weight, but that was the only thing the doctor talked about. K has been doing great at sleep (knock on wood) and I am enjoying my time with her. Sometimes I do get stir-crazy, but if you know me that is not unnatural. It is hard not jumping in the car and heading to the store. I am not used to that limitation and it has been an adjustment for me. Nate is doing great with K and I can't sing his praises enough. He is a great help and it is a comfort to me whenever I realize how blessed I am to have a man who is so willing to be a true father to his daughter. Who knew he had it in him?:) Please continue to left us up in your prayers. We are overwhelmed by the response this blog has gotten and we know that God is going to use our lives to impact others. Praise God from whom ALL blessings flow. Always remember that God is in control. That's definitely a comfort when things get rough. And they do. Turn to Him when you have troubles and He will be your rock.
Sunday, February 05, 2006
Our Little Baby Bird
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Tomorrow, we will be taking K to the Doc for her second checkup. We will find out more about her weight and our poor Doc will be peppered with questions. Christa has been compiling a list of all the questions that we want to remember to ask Doc. I guess having a million questions goes with being new parents. Well, I have to catch some sleep so I can function tomorrow. We will put an update on her weight and hopefully some new pics.
Friday, February 03, 2006
Daddy Bath Time
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Thursday, February 02, 2006
Kisses for mommy
Wide Awake
Baby Time
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