- We were able to get the x-rays done on her spine. She has scoliosis and we will be meeting with a doctor in October about this. She may need a brace, but she may not. They were not able to tell us much more about this than come back in a few months. The good news about this is that the doctor we will be seeing is the same one that was over the treatment for her hip displacia. He is a good doctor and K likes him.
- We will also be meeting with a geneticist or group of geneticists in October as we already knew, but we need to probably be anticipating an ultrasound on some of her organs to make sure there is nothing wrong with them. We were told that sometimes when you have a child with as many things as K has going on that there is often a syndrome that is at the root of it all. To find this out they will be looking for things like a horseshoe shaped kidney or an abnormal heart. While they mentioned these things to us they assured us (not that it does much good) that she is fine because she is developing well.
- K will have surgery on December 19. K will be having two surgeries that we are aware of at this point. They will be removing part of the band on the first surgery as well as doing some things to begin separating the pad of her hand from her palm. The second surgery will be planned later.
Monday, August 21, 2006
Where to start?