For those of you who don't know, K is a beautiful little girl who was affected by Amniotic Band Syndrome (ABS). She was born with a malformed arm and several other problems related to the ABS.
Wednesday, February 28, 2007
Day One At Shriners
Okay so here goes. K has been in her brace already today and it went alright. She really doesn't like it and they are trying to get it to fit properly, but we are a little bit in shock. We just talked to the doctor and found out that K will probably be in this brace at least five years and even after that she will probably have to have spinal surgery (rod in her spine) to correct the scoliosis at the age of six. That is if we are able to keep it from progressing between now and then. Little much to take today. We were hoping this brace would fix everything, but there is the thought that it probably won't. It will just slow or stop the progression. There is the possiblity that it can correct it, but it is very slight. Needless to say, today has been a rough day, so far. We will keep all of you posted. Thanks again for all of the prayers.
Monday, February 26, 2007
Working on Growing Too Fast
Sunday, February 25, 2007
Busy Week Ahead
Wednesday will be the day we go to the Shriners and get K's back brace. We are looking at staying there one night and if need be more.
Today was also Nate's last day at church. It is very bittersweet, but we have been fortunate to have such a church family. Everything is still in the air, but Nate will be staying at home with K. This turns out to be a very good thing because the brace will take quite a bit of time to get used to. Nate will be able to work with her on this as well as therapy. We will let you know how she is doing.
Thursday, February 22, 2007
Big Things Happening
Next Wednesday we are going to the Shriners to get K's back brace. They are going to keep her at least one night and they will monitor her. We have to work her into the brace to make sure that she is doing well with it. It will take time to get her up to 23 hours a day in the brace, but Nate will be home now and so that will help. We couldn't ask a daycare provider to spend that much time with K and her brace. We are hoping that this will correct the problem and there is a small part of me that is hoping it won't be during the day, but eventually will only be at night. We don't know for sure what is in store. It is going to be a very difficult few days/weeks, but we believe that this will help with the scoliosis. We will keep you all posted as soon as we are able.
Monday, February 19, 2007
Changing Day by Day
Wednesday, February 14, 2007
Happy Valentine's Day
Sunday, February 11, 2007
Pictures for You to Enjoy
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K is now working at pushing herself to sit and pulling up on furniture. We are wanting to get her doing these things before the brace is put on her so that way she won't be too far behind.
Friday, February 09, 2007
Long Week
Tuesday, February 06, 2007
A Long Day...Again
Once they were pleased with the x-ray, they had to cut off the cast. That was a very difficult part too because they had to use the saw to get it off. It was loud and she was already hot so it was a little hard for her. Her new brace will be ready at the end of February and we will have to go possibly stay the night so that they can gradually get her into the brace. It will take a little while to get her ready to stay in it 23 hours a day, but eventually she will spend that much time in it. We also have an appointment to meet with a neurosurgeon to discuss her "dangling tonsils." What exactly that means we have no clue, so don't ask. It doesn't affect her cognitive abilities, but other than that...who knows. K is doing better and is very happy to be away from the cast people. Thank you for all of your prayers and please keep them coming.
Monday, February 05, 2007
All Better Now...Hopefully
Just in case you didn't know, Nate and I got hit with the "stomach bug" this weekend. It wasn't a pleasant experience let me assure you. We are both doing better and K is doing the best. We think she had it first, but it didn't seem to bother her as much. Tomorrow we will be going to the Shriners to get fitted for the back brace. It won't be a pleasant experience, but it must be done. This brace will be done in the next few weeks and then we will return to have her put in it. We don't know what that will be like, but it won't be fun to begin with. Lots of adjusting for all of us. K will be just fine, but sometimes it is a little bit harder for mommy and daddy. We will let you know how it goes.
Saturday, February 03, 2007
Enjoying Life in General
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