For those of you who don't know, K is a beautiful little girl who was affected by Amniotic Band Syndrome (ABS). She was born with a malformed arm and several other problems related to the ABS.
Wednesday, February 28, 2007
Day One At Shriners
Okay so here goes. K has been in her brace already today and it went alright. She really doesn't like it and they are trying to get it to fit properly, but we are a little bit in shock. We just talked to the doctor and found out that K will probably be in this brace at least five years and even after that she will probably have to have spinal surgery (rod in her spine) to correct the scoliosis at the age of six. That is if we are able to keep it from progressing between now and then. Little much to take today. We were hoping this brace would fix everything, but there is the thought that it probably won't. It will just slow or stop the progression. There is the possiblity that it can correct it, but it is very slight. Needless to say, today has been a rough day, so far. We will keep all of you posted. Thanks again for all of the prayers.
Monday, February 26, 2007
Working on Growing Too Fast
Sunday, February 25, 2007
Busy Week Ahead
Wednesday will be the day we go to the Shriners and get K's back brace. We are looking at staying there one night and if need be more.
Today was also Nate's last day at church. It is very bittersweet, but we have been fortunate to have such a church family. Everything is still in the air, but Nate will be staying at home with K. This turns out to be a very good thing because the brace will take quite a bit of time to get used to. Nate will be able to work with her on this as well as therapy. We will let you know how she is doing.
Thursday, February 22, 2007
Big Things Happening
Next Wednesday we are going to the Shriners to get K's back brace. They are going to keep her at least one night and they will monitor her. We have to work her into the brace to make sure that she is doing well with it. It will take time to get her up to 23 hours a day in the brace, but Nate will be home now and so that will help. We couldn't ask a daycare provider to spend that much time with K and her brace. We are hoping that this will correct the problem and there is a small part of me that is hoping it won't be during the day, but eventually will only be at night. We don't know for sure what is in store. It is going to be a very difficult few days/weeks, but we believe that this will help with the scoliosis. We will keep you all posted as soon as we are able.
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